Welcome

I have suffered from autoimmune disease since the age of 17 and I have several relatives who are also fighting autoimmune diseases. I have been diagnosed with Autoimmune Hepatitis (AIH), Lupus, and the Antiphospholipid Syndrome (APS). Family members have been diagnosed with Rheumatoid Arthritis, Dermatomyositis, Grave’s, Hashimoto’s, Vitiligo, and Type I Diabetes.

In the search for my diagnosis, I have seen doctors in six states, from every medical specialty, seven of whom were Rheumatologists. I had an extremely difficult time finding a doctor to take my symptoms seriously because most of my blood work was normal and I did not look sick. I have a Master’s degree in Aerospace engineering and solve puzzles for a living as a systems analyst. I resorted to reading medical journal articles to try to put my own pieces together when the doctors were finished looking. I ended up being a very complicated case and had the unfortunate luck to end up with the rarest and oddest of symptoms, as if all autoimmune symptoms aren’t bizarre enough! It took me 13 years to finally find a doctor who understood my body.

As a result of my search for a diagnosis, I’ve learned a lot about the immune system, doctors, and the medical system. I’ve been asked by numerous people who have heard my story how did I find out certain facts, or how did I find a certain doctor because they also have a friend who the doctors don’t seem to be able to help? Over time, I’ll post all the knowledge I’ve gained over the years, to give someone else having troubles obtaining that elusive diagnosis some other options to consider when you hit a brick wall.

Email: autoimmunediagnosis@gmail.com

Medical Disclaimer

This website is for informational purposes only. Readers are encouraged to confirm the information contained herein with other sources. Patients should review the information with their professional health care provider. The information is not intended to replace medical advice offered by physicians. Remember I’m a rocket scientist not a doctor.

Monday, March 8, 2010

Glutamine and Lupus Hair Loss

I haven’t been very successful at finding legitimate medical resources about this blog post, but maybe someone else out there has additional information. I recently saw an endocrinologist for adrenal insufficiency from taking steroids over the years. He recommended taking L-Glutamine to help with my weakness since it is supposed to help build muscle. Besides helping with my weakness I noticed my hair drastically changed textures and started rapidly growing even in my thin spots from Lupus. My skin is also very smooth and heals much faster after the inflammation has stopped from the Lupus rashes. The changes in my hair occurred within a week of taking 15 g twice a day. It comes in a powder that you add to your favorite drink. Look for the USP grade. I ran out of the L-Glutamine 5 days before the next order arrived and my hair changed back to being brittle and fragile within a couple days. I’ve tried lots of shampoos over the years to help with the thin hair due to Lupus and nothing seems to help. The L-Glutamine is amazing. My hair dresser was shocked. While not a respected medical journal article, the following link had some good information about L-Glutamine.

Glutamine

It sounds like L-Glutamine could be good at treating autoimmune diseases. However, I couldn’t find anything in pubmed about L-Glutamine being used to treat autoimmune diseases. The closest article I could find was a dermatology article from Cambridge that explained the Glutamine is important and necessary for hair growth.

Metabolism of Freshly Isolated Human Hair Follicles Capable of Hair Elongation: A Glutaminolytic, Aerobic Glycolytic Tissue

Someone should really tell the rheumatologists about L-Glutamine.

9 comments:

  1. I started taking L-glutamine to re-build muscles damaged by autoimmune disease. I also noticed a change in my hair texture and the rapid growth. But L-glutamine is very effective for restoring the muscles, I just pray my immune system does not fight it!

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  2. I've been browsing on-line more than three hours today, but I never found any attention-grabbing article like yours. It's pretty value sufficient for
    me. In my view, if all website owners and bloggers made just
    right content material as you did, the net will likely be a lot more helpful than ever before.
    My website - www.HairAgainReviews.org

    ReplyDelete
  3. Nice way of explaining this subject, this Glutamine and Lupus Hair Loss line of content is very interesting.
    Great article, thanks for sharing, keep up the good work !

    ReplyDelete
  4. yes l-glutamine is related to autoimmune, i have the same problem with lupus. its related to leaky gut.

    i am getting better. my food allergy was causing me to have leaky gut which caused my lupus and hashimotos.

    l-glumanine works by helping the gut heal and preventing food from passing the wall of your gut (tummy).

    now that i on vitamins, and treatment for my leaky gut that was cuasing my autoimmune my ANA are going down.

    i hope you find someone to help you.

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  5. Thank you for posting this information! It is very helpful hair loss treatment delhi

    ReplyDelete
  6. Recently (about 4 weeks ago) I have started L-Glutamine treatments for bodybuilding. I also noticed new hair growth on my head where i had no hair previously. I have been searching the Web for answer and as previously stated there just isn't much discussed on the subject. Thank you for starting this blog and reinforcing what i have seen myself and proving I'm not insane.

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  7. I have autoimmune disease with hashimotos, chilblains, osteo and psoriatic arthritis. I haven't been diagnosed with Lupus but like you mentioned all of my blood tests say to my rheumatologist that I do not have Lupus. I have been losing my hair and it is very thin so I appreciate hearing about the L Glutamine. It really makes sense because my husband and I have been researching about Muscle Rx for building muscle and glutamine is part of the ingredient.
    Thank you for your site, it's very helpful.

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  8. I just want to tell anyone who is going thru what I went thru for a year until about 2 months ago, hair just falling out by the droves especially when I would wash it and then again after getting out and running a pic thru it then again when I'd brush it as I dried it. Good thing I had extremely thick hair. Still though, at 45 I would have loved to have hung on to all my beautiful long healthy hairs (as of course the ones that didn't fall out weren't that great) anyway, I read online that glutamine was the only thing that stopped someone else hair loss (oh I went to 6 drs it was celiacs caused by poor diet and lack of sleep yada yada) well my hair stopped falling out. Can't even tell you how happy I am I actually had people at doctors office joke that I could switch up wigs and colors hahaha not funny. It was very scary. No I do not work for gnc but FYI I got the collagen hair healthy 3 bottles of different stuff in a box from gnc. I do not take the evening primrose it gave me bad dreams and it is a ligit side effect. Now hoping to start eating and exercise better meanwhile glutamine is saving my sanity good luck and you're welcome :)

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  9. Hi There.
    I think you need to look at the connection between leaky gut (IBS) and auto immune diseases.
    Its now come to my attention that many problems start in the gut.

    L-glutamine heals promotes rapid healing of the gut and you will find studies supporting this statement.

    What happens is that the gut wall becomes compromised and bacteria, food and waste make it through into your blood stream which illicits an immune response which can manifest in a myriad of symptoms and diseases.

    I also recommend fasting as this gives the gut a break and look into fasting and taking glutamine and water only.

    God speed.

    ReplyDelete